life as i know it

Been diagnosed with TN earlier this September, then more than a couplah weeks ago, was hospitalized because of a suspected adverse reaction to my TN pain maintenance drug: Tegretol. The diagnosis was Erythema Multiforme- skin allergy in the form of rashes in multiple forms.

Today, I had to see my allergist again who is actually the best doctor in this goddamned city. He tells me I have Vasculitis. I forget w/c form. He assures me it's not life threatening and that I'd need to have several tests and that I've to go thru steroids. For the life of me, it's actually making me nuts. My skin had lesions and is itchy and dry and scaly. FML.

So, I did some reading about the condition and found out that it's a disease so rare and it's hard to diagnose and it takes prolong medication. I'm soooooooooo screwed.

I know need remission- again. I'm grateful TN attacks are at bay.

Sometimes, I do not know what to do with myself.

--

At least today, J and I had beef burger, green tea, sour creme and barbeque fries at Taters. Before seeing Doctor Rafaelito. Then had coffee at Bob's SM and I've enjoyed watching him play on a digital baby grand at Casio.

Everything's bad as it is good. Sad as it has made me happy. Fucked and so put together.

links to learning about vasculitis:
http://www.mayoclinic.org/medical-edge-newspaper-2010/jan-01b.html
http://rarediseasesnetwork.epi.usf.edu/vcrc/learnmore/definitions.htm
http://vasculitis.med.jhu.edu/faqs/faqs.html

xx

sated with hospital food in a hospital bed

in bullets

wednesday night, october 20- i wind up with a high fever that would go between 38-40 degrees

21st- stayed at home, i asked for a PTO- paid time off. and my rashes appeared on the back

22nd- i asked j to take me to the hospital in the morning and i wind up staying in

my weekend- spent in the hospital.

saturday morning- i asked that my dextrose/iv be taken out after my hand was all painful.

sunday morning, my fever died down. after promising to drink 4 liters of gatorade. and i took an extra effort to eat tons-ful of jell-o. went on steroids.

monday- my whole body is red and swollen and itchy

tuesday- last day in the hospital. fml, my rashes are still itchy allover.

the verdict: quit tegretol- now i'm gonna be drugless when going about my tic douloureux. hay. :(

2 hospital visits in one month. what could this mean to me?

i wish i were terminally ill. haha. it would make things easier. i don't have to think about a future home, retirement, savings, and those things. it's going to be the bohemian rhapsody for me.

girl you can be so obscene

i'm coming down with a sore throat and a fever.

october 4- monday: j and i went to riverside to have me admitted. we waited a bit, the nurse was reluctant to take me in because i have no fever - but, i explained that several tests were to be done on me and i had seen a neurologist and that i'd have to go thru mri and i have tic douloureux

october 5- i had mri. a hep-lock was placed on my left hand and bruised it. aside from the pain on my jaw, i have to bear with the crazy pain on my hand. medicine that cost a little more than 5k was injected on me. suddenly during the mri; i buzzed and asked that the scan be stopped or that i be taken out of the capsule so i may sit for awhile and was asking for an ice pack, the lab section had none. the guy who was scanning told me to just put up with the pain. whatthefxck really.

no one instructed me that there's a 15 minute lull in between scan, i couldn't go pee or scratch an itch. it was jarring.

once i was done with the mri, i asked the nurses to take hep-lock off me cuz i was feeling uncomfortable. they told me my doctor would not allow it. i told them it's only going to be used for my mri and my mri is done. they informed me that until we get the mri results that's when the hep-lock gets pulled off. i threw the hugest fit and informed them that it's medical malpractice, a patient is in great pain and no one is informing me why i have a foreign instrument in my hand when no other drug is going to be further administered. i told them the same thing happened to my nephew some few months ago. they left the needle of the dextrose on his hand even if he used up his dextrose, it took them 12 hours before they got it- only after i threw fits.

they even told me that it's my neurologist's decision and some antibiotics may be injected on me further into the evening and that if i am uncomfortable with the hep-lock on my left hand, they will insert another needle on my right hand- which is really futile because i wasn't given any other drug except those pills that i had to take through my mouth.

i take it as if that if they are unsure that they're gonna get paid, they would leave needles on their patients and would only take them off after their patient gets billed. it's quite barbaric. and i'm going to let everyone know about this.

this lunatic hospital would need to be sued or investigated. they cannot continue mistreating patients like that.

in the first place the medical practitioner's maxim is primum non nocere: first do no harm. wtf is riverside hospital doing?
-
october 6- i was billed with php21,708.09. i have hmo, i have philhealth. what if other patients don't have insurance. i wish doctors would discuss the cost of these services. i don't know, makes you rethink that some people have no sense of humanity in them.